 Timeline |
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| 4/10/06 Connor and Rhys's Birthday |
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Connor Luke born 4/10/06 at 1.54am weighing 4lb 5ozs
Rhys Jake born 4/10/06 at 2.14am weighing 4lb 13ozs |
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| 5/10/06 |
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Connor is on c-pap and Rhys on full ventilation, both have numerous blood tests done to try and find out whats wrong. |
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| 7/10/06 |
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Connor goes on to full ventilation because hes too tired to breathe on his own. |
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| 11/10/06 |
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1 week old, A paediatrician from Gabowen came to take a muscle biopsies from Connor. |
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| 13/10/06 |
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We decide to stay at home, Doctors told us to prepare for the worst. Got called back to the hospital because Rhys was very ill, when we got there he had been resusatated after being out for 40mins, We thought we'd lost him. |
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| 14/10/06 |
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After being called in again at 12.30am because Rhys needed a drain put in his right side the nurses recommended we have the boys Christened because we came so close to losing one of them. They were both Christened at 4pm that day. |
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| 16/10/06 |
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Found out the muscle biopsies had only found fat, needed to do it again. More blood tests taken. |
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| 17/10/06 |
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When we went in today both Connor and Rhys were waring "tiny" Blue t-shirts, they looked adorable. Rhys had mouth swab and blood taken. |
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| 18/10/06 |
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We stayed at the hospital because Connor was having an open muscle biopsies done and skin samples taken, he handled them both fine. |
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| 19/10/16 |
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We thought we were having a good day, we had been told we could bath the boys but when we went in to do it Connors vent needed changing. He didn't like it his heart rate dropped but didn't stop. Tube was put in and he settled ok. Then Rhys's gases went terrible, he was retaining to much salt, doctors changed some fluids and he stabilised. |
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| 20/10/06 |
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Doctors told us today the biopsies had found no muscle at all which meant the boys future was very bleak. Didn't know what to think, we were warned that they probably wouldn't survive many more tube changes, my biggest fear was losing one and then the other a week or two later if they were going to leave us they needed to be together. We started to worry about how much pain and suffering our boys were going through to spend this precious time with us? |
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| 21/10/06 |
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This was a lovely day, all our family made it in to see them both, was a happy day, a time to treasure. |
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| 22/10/06 |
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We had to say Goodbye.
When we went in the evening Connor needed a tube change, doctors were called to stand by, when everything was arranged Rhys's pressures dropped and he needed one to. Never since they were born had they needed it on the same days let alone at the same time, This was our sign We could see they were tired and the time had come the decision was made for us.
It was beautiful yet heartbreaking holding them together for the first and last time. They both fell asleep in mums arms at 10.31pm after over an hour of talking, singing and cuddling with their proud parents. They left together as silently as they entered this world but with bonds so strong never to be broken with so many family and friends.xx |
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| 22/12/2007 |
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LEAH HOPE BARTLETT - Was born sleeping at 3.05pm and weighed 2lb 2oz. We spent just over 5 hours cuddling our precious angel before saying our heartbroken goodbyes. xXx |
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